Privacy statement

Down Syndrome Education USA is committed to protecting your privacy. This statement explains our data processing practices which govern the processing of your personal data.

How do we collect information?

We will obtain personal information about you when you enquire about our activities, register with us, make a donation or otherwise provide us with personal information.

What information do we collect?

The types of information we might collect includes, names, addresses, gender, email addresses, telephone numbers, fax numbers, credit/debit card and direct debit details.

Credit card details

Please note that we do not store credit card details. If you make a payment via our online systems, your credit card information will only be processed securely by our payment provider. If you call to make a payment, we will destroy records of your credit card number as soon as we have processed payment.

How do we use your information?

We will use your information: to provide you with the information, products or services you have requested to improve the delivery of our information, products and services (including this website) for administration purposes to further our charitable aims and to comply with the law.

We may need to share your information with our social enterprise subsidiary and other associated organizations, and agents for these purposes.

We will not share your information with other third party organizations.

To enable us to administer your query or order and to send you further information about our work we and our associated organizations may review these details to help us understand more about you and to contact you about our fundraising, campaigning and other work.

We will never sell your details, nor exchange details with other charitable organizations.

Do we use 'cookies'?

'Cookies' are small pieces of information sent to your computer and stored on your hard drive to allow that organization to recognize you when you next visit.

We may store information about you and your activity in cookies. If you want to delete any cookies that are already on your computer, please refer to the instructions for your web browser software to locate the file or directory that stores cookies.

What happens when you link to another site?

This privacy policy applies to the Down Syndrome Education USA's websites only.

Our websites have links to other third party websites. We do not pass on any personal information about you to any other site when you link to another site. You should ensure that if you use a link from our websites to another website that you read the privacy statement of any site which collects personal information.

How do we protect personal information?

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.


If your personal details change, please help us to keep your information up to date by notifying:

Down Syndrome Education USA
18023 Sky Park Circle, Suite F
Irvine, CA 92614

Under 18 year olds

If you are aged 18 or under, please get your parent/guardian's permission before you provide personal information via our websites.

Your consent

By providing us with your personal data, including 'sensitive' personal data such as regarding your health, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement. You also consent to our transferring your information to countries or jurisdictions which may not provide the same level of data protection as the USA, if necessary for any of the above purposes. If we do make such a transfer, we will, if appropriate, put in place a contract to ensure your information is properly protected.

Access to information

If you wish to see what information we hold about you, please contact:

Down Syndrome Education USA
18023 Sky Park Circle, Suite F
Irvine, CA 92614

We reserve the right to amend this privacy statement at any time. If we do, we will post notice of the change on our website and your use of the site any after such changes are posted will be deemed to be your acceptance of such changes.